Cinema

What does a seizure look like?
Watching anyone have a seizure can be quite frightening, witnessing a person lose control, terrifying!   as they make strange noises as saliva  runs from their  mouth, as they strangely stare into space or their eyes dart quickly in the same direction, maybe they've suddenly dropped to the ground and now they're shaking violently all over with jolting/swinging arms and legs, or just twitching uncontrollably!  they're  possibly turning blue! the colour drained from their face within a second, and a loud gasp is the last thing you hear as you watch a body turn lifeless and floppy.... Waiting,  watching for another breath... Terrifying... this person is completely out of control! 

Imagine living each day not knowing when this will happen to you? 
Imagine shopping with your friends one minute and then waking up on the ground the next, dazed  and confused! tired and sore! Maybe you hurt yourself thrashing about uncontrollably.... you are so exhausted, your head is throbbing,  after all what just happened to you is the equivalent of running a marathon, every muscle in your body has just worked extremely hard contracting.   Now you realise you are amongst friends, embarrassed that you lost control! 
How can this be your fault? You lost control of every part of your body, you may have even lost bladder control  without realising. You are lucky!, as this time you were amongst friends! What if you were swimming by yourself? Taking a bath? How could you possibly save yourself when you don't even know its happening! 
Terrifying to watch? Imagine the terror in the hearts of those who live with an ongoing fear! Who will help me? Who will run? 

When I started this blog I had absolutely no intention of allowing anyone to witness Pipers seizures! Nobody needs to see that! I can't stand to see that!, why would  anyone want to see my baby girl lose control? why would I want to open that personal  part of our world to strangers?

....many beautiful comments on our page are not the words of strangers, they are indeed friend, with a genuine interest and concern,  I'm certain many with their own experiences and stories to tell, some maybe far worse than ours,.. Some maybe new to the world of epilepsy and in desperate need of answers happening to stumble across this page, searching for clarification that what they've witnessed as a carer, parent, grandparent, friend  is similar to another. 

I've spent many nights searching the Internet for answers, sifting through You Tube to find a child in a similar circumstance! It may be hard to understand! Yet it wasn't enough to read this information of what a seizure looks like, I needed to see... I needed to compare!  and as I read comments posted to those pages,.. from studying nurses thanking parents for this invaluable information of what a seizure looks like, and how they feel they'll be far better prepared witnessing something a text book just can not describe. I understood it's not only the sufferer and their families that can benefit from such footage, there is indeed a medical world  who may also benefit. 
 
I'm sorry this has turned quite lengthy, although I feel I must tell one more story which brought me to this decision:
That of a young girl: 

My three young nieces and a friend were having lunch with their mother at a McDonald's restaurant, as the girls were seated waiting for mum to order they witnessed a young girl  fall to the ground knocking chairs and tables and violently jerking, terrified the friend, an older girl ushered the three together, ran to the toilets and locked the girls  into a cubical. Now I realise this young girl had done what she thought best, and proud of herself as she retold the story as the heroine, which indeed she was! she had every good intention to protect her young friends from a crazed young lady, or so she  had thought! 
If only our children had a better knowledge and understanding of epilepsy and how it is not to be feared, if only they knew they could have rushed to remove chairs surrounding this young girl and reduced her chance of injury, they could reassure and comfort this poor girl in a public place, who would have felt confused embarrassed and tired once the seizure was over, they could have placed her into the recovery position in case she was unable to swallow her secretions and protect her airway. They could have called for help! 
I felt terrible hearing  this story, thinking... what if that was my daughter! and people ran! 
People were frightened and ran away, rather than take a few simple steps that could save her life!

Please be aware this footage is of a sensitive nature, displaying our baby girl during some of her varied seizures.

For information on seizure first and how to make your child's school seizure smart please visit 

Epilepsy does not discriminate it can happen to anyone of any age at anytime, there are approximately 224,000 Australians living with epilepsy. 50 million people world wide!

10% of Australians will have a seizure in their lifetime

Epilepsy causes approximately 250 deaths per year 

The most frequent cause of epilepsy related death is sudden unexpected death in epilepsy SUDEP,  where sudden death occurs in a person with epilepsy for no apparent reason. 

The exact cause of epilepsy is unknown in approximately 6 out of 10 people living with the disorder.

Epilepsy is not just one condition, but a diverse group of complex brain disorders, resulting in recurrent seizures.

Cath 23.11.2013 21:34

Thank you for sharing such a personal experience. As an epileptic myself I appreciate the awareness you are creating and am amazed at Piper and her strength.

Amanda 19.11.2013 07:14

Thank you for sharing such personal private moments. I am amazed by your strength. I am honoured to be able to share in your journey. Thank you

Annette Gray 16.06.2013 12:04

Thank you so much for sharing, from start to finish, I had shivers down my spine. I feel so much for Piper, and for you, her family.
I feel the love for her.

kassandra de bortoli 15.06.2013 06:44

What an amazing strong little girl with an amzing family. She has such an enormous support group! X

Sandy I'Anson 12.06.2013 10:45

Piper is such a brave little princess <3 Keep up the fight guys you are both doing such an amazing job xxoo

Mick & Sum Pain 13.06.2013 08:47

Thank you so much Sandy ‚̧ love to you and yours xxxxx

Sal 12.06.2013 05:14

Through awareness, comes understanding. Your words & footage will make many people stop & think & be better equipped to assist someone enduring a seizure.

Mick & Sum Pain 13.06.2013 08:57

I certainly hope so, thank you so much Sal <3 xx

Tanya Black 12.06.2013 04:31

Thankyou so much for sharing and helping create awareness. Beautiful and courageous little piper, and such comfort and love from big sis xx Love to you all xx

Mick & Sum Pain 13.06.2013 09:00

Thank you Tanya <3 for all your beautiful words of love and support xx

Erin 12.06.2013 00:01

Keep fighting beautiful girl, your amazing xx
Thanks for sharing :)

Summer 13.06.2013 09:36

Thanks Erin, it all becomes so much easier with the support of dear friends xx

Rosanna 11.06.2013 16:38

Summer...thanks for the awareness..It made me cry and to think what you guys go through everyday..Heartbreaking to watch the poor little darling have seizures..

Summer 13.06.2013 09:37

You are so beautiful Rosanna, Thank you so much! <3

ainslee 11.06.2013 14:47

my life!!! But she is now on the right meds & hasn't 'fitted' in 11 years!!! Something we are all proud of! Stay strong for your beautiful family!!! xox

Summer 13.06.2013 09:44

I love hearing these stories, thank you for sharing with me, 11 years is awesome! your mum sounds amazing! you as a family sound amazing! love and thanks to you

ainslee 11.06.2013 14:43

Hi, im good friends with Claire & watching this brought many tears to me...as my mum too has epilepsy. I have seen her 'fit' & it was the most scariest times of

antlee 11.06.2013 14:42

Stay strong guys, you are doing all you can. Piper is so lucky to have you both. Extra hugs for her tonight.

Sum & Mick Pain 13.06.2013 09:46

You have such an amazing heart Ant, and we can't thank you enough xx love to you and your precious family

Chris I'Anson 11.06.2013 14:27

Summer :(
Got me all upset before I go to sleep.
Rest easy knowing that we all love you and your family! X

Sum & Mick Pain 13.06.2013 09:48

Aww that wasn't meant to happen xx you are so sweet! thank you Chris much love and big hugs xo

Skye Sparkes 11.06.2013 14:13

Such a beautiful brave little girl. Thank you for sharing guys.xxx

Mick & Sum 13.06.2013 09:50

Thank you for being such a wonderful support and friend, we love you! beautiful Aunty Skye xx

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Latest comments

11.11 | 06:44

hi, my name is Lexi Crutchfield i go to school with Willow, i wish you all the best and i hope piper can become the best she can be.

22.05 | 11:21

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07.02 | 08:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

06.02 | 04:38

Piper is one tough little cookie, I have no doubt at all that she‚Äôll continue to grow and surprise us all. Love you Princess 👑 Piper. 💜