Our Purple Princess

Piper's Path

Piper Sydney was born a strong and healthy baby girl, less than three months  later,  her little life was about to change..

Piper developed a severe seizure disorder, leaving medical specialists baffled, unable to pin point which part of the brain the seizures are coming from or why they occur, as Pipers family continues to seek answers and Piper undergoes extensive testing, their little girl continues to fight her own little battle, Piper has had up to 25 seizures a day, the seizures have continued to change over time making treatment quite difficult. 

 Piper went through a stage of regression losing the ability to suck and swallow, including her own secretions,  a nasogastric tube was introduced to ensure Piper receives her necessary daily fluid and medications.

Each day begins with a mixture of six anticonvulsants.

Piper is 17months old, unable to sit, crawl, walk or talk, with poor head control, floppy limbs, and seizures which leave her exhausted.

Piper’s development continues to suffer, although her spirit continues to soar...

This is her story...

Lexi Crutchfield 11.11.2020 06:44

hi, my name is Lexi Crutchfield i go to school with Willow, i wish you all the best and i hope piper can become the best she can be.

willow pain 30.07.2018 23:31

I love you piper you mean the world to me
Love your sister willow

Emma Parker 29.11.2017 15:10

What a beautiful little girl. I am praying for Piper.

Samh 25.10.2017 13:53

This Dr can cure your child

My heart goes out to your baby daughter and your family

kwazulu dumisani 22.07.2017 11:39

Good evening Piper's Sydney's parents my name is kwazulu dumisani im the Grandson of Nelson Mandela born 8n victoria not South Africa myself i will help yo

John Pellow 31.05.2017 07:46

Very fantastic and well written post.Its extremely good and very helpful for me.Thanks for sharing this great post.

Lee wood 23.09.2015 06:38

What a gorgeous little princess. I hope you get answers I will continue to sell raffle tickets and help in any way I can

Carol Keightley 04.11.2013 10:28

if love can find a cure I'm sure she will win lots of love goes with this message xxx

Darren Gibson 31.10.2013 02:12

I just heard you on 3aw and broke down crying. Our daughter violet has just turned 4 and before we give her 3 yo clothes to salvos would love u to have them

Pain Family 04.11.2013 07:07

That is the most beautiful message and the most thoughtful gesture, we are truly touched! thank you so much! thank you for taking the time to make contact with us and visit Piper's website💜
we are quite fortunate that Piper is surrounded by much love, i

jan crabb 02.10.2013 01:45

What a beautiful little angel. Why does fate deal so terrible a hand to one so young and innocent. My thoughts and love go with yr baby girl n family summer

Pain Family 04.11.2013 07:13

Thank you Jan, I often wonder the same :) and then I think of all the fabulous things Piper has given us, all the beautiful people who have crossed our path! xx

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Latest comments

11.11 | 06:44

hi, my name is Lexi Crutchfield i go to school with Willow, i wish you all the best and i hope piper can become the best she can be.

22.05 | 11:21

Get Physiotherapy Equipments for instant pain relief

07.02 | 08:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

06.02 | 04:38

Piper is one tough little cookie, I have no doubt at all that she’ll continue to grow and surprise us all. Love you Princess 👑 Piper. 💜