Hope Love Cure

Time has just flown and we find ourselves only now settling back into routine and home, suitcases remain half packed from our back and forth travels to Melbourne, although appointments are finally starting to distance a little. I’m so sorry we’ve been MIA these past few months during Pipers recovery, our amazing little girl has had some rotten days, and at times I wondered just how I could have put her through something so traumatic, we've had some difficulty with pain management, and as Piper tried to move her legs the muscles would spasm causing a great deal of discomfort, nappy changes and transfers just broke our heart, and seizures would again cause involuntary movement to Pipers legs causing further discomfort, frustration and pain. Piper appeared to be healing beautifully, then suddenly became increasingly uncomfortable, we later discovered the exceptional healing and new bone growth may have been responsible for this, as the ball and socket reconnect with each other the friction begins to create further inflammation. I felt so relieved to view the final x-ray, to actually see Pipers bilateral hip dislocation, how the hips had deformed over time, understanding there was certainly no other option. still I wanted to ask “Do we really have to do this?” as Piper was wheeled into the operating theatre, her smiley little face staring back at me. still I'm unable to comprehend the fact that Pipers femur bones were cut through to create the required angle. It just amazes me! The extraordinary work our surgeons do. I guess all’s well that ends well :) and things are finally looking wonderful once more. Our care team are simply amazing from hospital to school! Piper has achieved two full weeks back at school (our record!!) and has made some incredible progress, enjoying hydrotherapy, even returning to her standing frame! I have so much admiration, praise and thanks for the place which brings to Piper so much joy, stimulation, therapy and love. Piper is starting to move onto her side for play, which is magical to see, banging her hands and kicking her legs! We’re finally back on track! and just watch this space! Because anything is possible! Xxx A photograph .. or a few ;) tells a thousand words! - 💜xx pipers past months of moments missed 💜x

Nana & Marg 09.11.2016 01:24

we are so glad things are working for you all take care. Nana & Marg

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Latest comments

11.11 | 06:44

hi, my name is Lexi Crutchfield i go to school with Willow, i wish you all the best and i hope piper can become the best she can be.

22.05 | 11:21

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07.02 | 08:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

06.02 | 04:38

Piper is one tough little cookie, I have no doubt at all that sheโ€™ll continue to grow and surprise us all. Love you Princess 👑 Piper. 💜