I don't want a diagnosis! I just want to keep believing Piper will get better, she has her own condition that she'll beat!
we now know of brain plasticity, the ability of the brain to change over time creating new neural
pathways. There are still things even the most well informed scientist and neurologist just can not understand, we are still discovering the workings of the brain, there is still so much untold, so much waiting to be discovered. Research
plays a vital part and each time I read, each time I find something that could possibly benefit Piper, it all points back to research... Either more children need to be found to display similar symptoms for research to head in that direction, cost is
a huge factor and funding must be passed to even get off the ground, so as children are found with similar signs and symptoms funding is submitted, and if approved only then can research continue,
Or trials are out of reach as still only at research
level, not yet approved for use, passed, funded or available, this could take years! I'm sure the answer is close, I'm certain if unable to cure it will at least improve the quality of life for Piper and so many other children, It's just a matter of how long
we must wait! and what we do in the mean time: Physio, speech, occupational therapy , hydrotherapy, play therapy, overseas brain centres and intense therapies for achieving human potential, research trials!
The time is now!
she is living her life now!
such a beautiful little soul almost trapped in a body that does not do her justice, there's a fighting spirit inside, and eyes with a smile that say, I just want to play!
We'll never
give up on our cheeky Piper! our little girl can give us so much without words and movement, I can only dream to imagine what the world could hold for this little princess.