Hope Love Cure

Another door opens ❤
During many nights of searching the Internet, we along with others  stumbled across the ketogenic diet, I was in doubt we'd ever need to travel this path and  had hoped by some form of a miracle Piper would find a combination of medications that would somehow keep the seizures at bay, sadly this has not been the case and as we have few remaining options the ketogenic diet has been suggested to us once again. twice in the one week as a matter of fact! Perhaps it's a sign! one can only hope! :))
The Ketogenic diet is a medically supervised diet used for children with poorly controlled seizures, it will not work for everybody and comes with its own complications, however it has been used since the 1920's and can offer a significant reduction in seizure activity if successful. 
We have been placed on a waiting list for this treatment, and meet with specialist next year! :)
 
Another topic of discussion was that of Piper's NG tube, it was suggested it may be time to consider a peg in Pipers stomach, this will also be considered when we visit a gastroenterologist next year.
 
 2013 holds extra high hopes for us and the most wonderful news is...we will have a consultation with Louise Rothols -Anat  Baniel Method,  practitioner for children, in  late January. We simply can not wait! 
 
Finally we feel, we are moving forward!  
Heading  in the right direction! and supported by the most amazing of people 
 
To our medical specialist, loving family, treasured friends those who we know well and those who we've never met! Thank you for your continued support in the fight for our purple princess πŸ’œ xxxx 

 

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Suzy Gulbin | Reply 02.01.2013 06.41

Thinking of you and your families. Wishing, hoping and praying you get some answers this month with your specialist visits.
You are an amazing family xx

Summer & Michael 09.01.2013 03.28

That is really lovely Suzy, Thank you for keeping us in your thoughts <3 much love xxxx

Chris I'Anson | Reply 28.12.2012 03.36

Thanks for a lovely Christmas. Shes so beautiful and deserves nothing but the best care, which is what everyone is giving her.
Keep smiling Sum. xx

Summer 09.01.2013 03.32

Thank you Chris! For making our Christmas so enjoyable, We can not remember when we last laughed so hard :)
With such gorgeous people surrounding and supporting us, we can only smile! :) xx

Emma congress | Reply 28.12.2012 03.02

Keep fighting piper!

Painy & Sum 09.01.2013 03.33

Thank you Emma πŸ’œ

Sally Parsons | Reply 27.12.2012 14.14

Late January will be here before you know it! In that time, imagine the discoveries that could be made & the positive progress for Piper - Much to look forward!

Pain family 09.01.2013 03.37

You're absolutely right Sal :) xx
It's pipers year! We just know it! πŸ’œ
Much love & thanks :))

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22.05 | 13:21

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07.02 | 09:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

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06.02 | 05:38

Piper is one tough little cookie, I have no doubt at all that she’ll continue to grow and surprise us all. Love you Princess πŸ‘‘ Piper. πŸ’œ

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13.10 | 11:42

Love yo piper to the moon and back

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