Hope Love Cure

Shine your way
Hours between seizures rather than minutes is an amazing privilege. A few days lost this week, although for the most of these captures, the recovery is well. We take this brief chance to do all that we can, how nieve we were to believe we could work Pipers therapy into a schedule, we try to take charge of our lives and introduce what we feel is best, best to succeed, best to move forward, best for our family, for our little girl. We are instantly reminded the decision is not ours to make we do not have that honour, that privilege, nor the control, so we'll amend our thoughts and play by the rules of a powerless body to a powerful mind. We may not yet understand you or why you choose to play this cruel game of give and take, but we are finding strength in our days and power in our knowledge, we are building a team of extraordinary and brilliant minds who are just as curious to find you, to conquer you! We see you steal moments of life away, we see you strike with incredible force as we stand helpless feeling powerless against you, we struggle to understand why the innocents of our baby girl is cast upon by your shadow, there is so much you've already taken away. There are days of heartache and then we receive days like these.... when we are reminded..we're already fighting the odds, we're further than ever expected to be! still fighting, still searching for the answers that will find your name, assisting us to better prepare our little one for the battle against you. Last week was amazing! Piper had periods of wonderful head and hand control, daily seizures reduced to under ten a day and the days that allowed a quick recovery were some of the best we'd ever spent with our girls as a family. Days with beaming smiles and knowing eyes! We'll settle for nothing less than sunshine, strength and smiles AND Balloons!! Aunty Stace we need more balloons :)) xx Whateverittakes#nevergiveuphope#pickedthewrongpurpleprincess#shineyourway

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Annette Gray | Reply 12.09.2014 23.55

People on the ship have been talking about the amazing effects of marihuana oil, and how it's slowing down the seizures, they also want it legalised. xx

Pain family 14.09.2014 13.03

It's so wonderful to hear the conversations are out there and people can appreciate the importance of legalising this safe and effective medication x Have fun!x

Tracey | Reply 11.09.2014 04.12

Bless your heart and soul little angelπŸ‘Ό Hoping for all the sunshine you will ever need sweet girlπŸ’–πŸ’–

Pain family 14.09.2014 13.05

Xx thank you! πŸ’œ

Fiona Black | Reply 11.09.2014 02.30

You constantly amaze me Sum. XX

Pain Family 14.09.2014 13.05

Love you! Xx

Skye Sparkes | Reply 11.09.2014 00.19

Such a clever girl, Aunty Skye is so very proud. Miss Williw you are the best sister anybody could ever ask for. XxπŸ˜˜πŸ’œ

Pain family 14.09.2014 13.08

We thought you'd like our new trick Aunty Skye xx love you lots! πŸ’œ

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Latest comments

22.05 | 13:21

Get Physiotherapy Equipments for instant pain relief
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07.02 | 09:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

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06.02 | 05:38

Piper is one tough little cookie, I have no doubt at all that she’ll continue to grow and surprise us all. Love you Princess πŸ‘‘ Piper. πŸ’œ

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13.10 | 11:42

Love yo piper to the moon and back

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