Day 1 (Australia) Arriving at 8am and direct to RCH our complex little girl continues on in her own little style, signs of an infection are not evident, blood tests and X-rays have all returned clear the peg has small amounts of blood at the site although nothing sinister or to suggest this would be causing such distress, Pipers chest is superb which is quite a first,
there is much to rule out, and much more to discover, we are due to see developmental
medicine along with neurologist today.
Praying Miss Piper wakes brighter, there's sunshine and smiles we've been missing for days! x
(Day 2) This morning while continuing on her wave of emotions our little ones tears began to subsided,
and what appears to have caused such distress is now believed to be the high level of one particular medication a reintroduction to a past anticonvulsant Keppra, the reduction of this medication seems to have improved Pipers distress and although still experiencing
quite a mix of emotions it looks as though we may just be back on track! with the return of smiles! today we are free! The RCH happy for us to observe and adjust Pipers medication as we remain close by.
Our days often come with
a twist although today's was one of wonderful surprise as Nana Barb came wheeling her suitcase along the hospital corridor, so wonderful to have that extras support, and Miss Willow was beyond excited!! in fact I think we all were x
We thank our beautiful little community for such encouraging words of support and love, and for keeping Piper in your thoughts and prayers xxxx