Hope Love Cure

A Day of Freedom
A few remarkable things happened in the past two weeks Piper managed to swallow food without choking aspirating or retching, her swallow and chewing have improved considerably, at the risk of providing too much information Piper is still unable to pass a stool without assistance although we hope with time and food encouragement this will improve also. We still have quite an emotional little girl on our hands as the medications continue to change, Pipers body must adapt to this along with the stem cell growth, the days of smiles are wonderful, and as for the crys! We remind ourselves of the good that may come. We can tickle toes and most often Piper's foot will pull away! we watch the curiosity of our little gymnast as her foot extends to her mouth, we've seen some wonderful extension and movement in the past, although through the hundreds of examinations we've never come to witness the wonderful sight of reflexes, and although for now what we see is inconsistent and still in places remains nonexistent, it's the presence of those connections the evidence of signal breaking through, and with that brings an extraordinary amount of hope. We may have tried to keep the next little milestone close to our chest, In fear those cards have been dealt before, although our excitement prevents us from doing so... For three consecutive days Pipers had only one seizure each day and yesterday? well that day marked zero! So we cross our finger tight that there is a new pattern to emerge and far better days to come xxxx With Love and Light Michael Summer Willow & Our Purple Princess Piper xxxx Please head over to the main menu 'Ni Hao From China' to view our picture in progress of our journey thus far. xxxx

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Sal | Reply 10.06.2014 15:52

Take whatever positives you like & celebrate the progress! Well deserved & hopefully the new pattern is only the beginning of more positives.

Jenny & Brendon Gledhill | Reply 10.06.2014 11:20

Hi Summer & Mick, these small milestones are very encouraging and must be so wonderful for you to witness. Our best wishes for continued improvement.

Jane Gerke | Reply 10.06.2014 00:08

Excellent news

Pam and Dave xx | Reply 07.06.2014 09:00

wonderful to read of Pipers achievements. The staff sound so caring and dedicated to their work. In our thoughts, and keeping up with other stories from Barb

Chris Maynard | Reply 04.06.2014 01:25

Fantastic news for everyone.

antlee | Reply 03.06.2014 12:37

Awesome news, good work

Kelly Mccoy | Reply 03.06.2014 06:40

So glad to hear how well she going

Cheryl Clemence | Reply 03.06.2014 02:26

So happy for you all. Good things can only come of this. Keep the trust, hope and faith and the sun will shine through.

Vicki P | Reply 03.06.2014 01:46

Awesome! Great news and certainly reason for hope! Love to all....Vix

Sandy I'Anson | Reply 03.06.2014 01:20

So glad to hear such positive news . We have been thinking of you all big hugs and kisses to our purple princess xxxooo ❀️

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Latest comments

11.11 | 07:44

hi, my name is Lexi Crutchfield i go to school with Willow, i wish you all the best and i hope piper can become the best she can be.

22.05 | 13:21

Get Physiotherapy Equipments for instant pain relief

07.02 | 09:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

06.02 | 05:38

Piper is one tough little cookie, I have no doubt at all that she’ll continue to grow and surprise us all. Love you Princess πŸ‘‘ Piper. πŸ’œ

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