With only eleven sleeps to go until we take our baby girl to Beijing I struggle to find the words!
I'm so anxious and excited, desperate to board that plane to know we're on our way to treatment that could potentially change her world, the language
barrier, the fact this is our first time away from our comforts, therapists and specialists I can't help those moments of slight, well.. panic! although I know with all
my heart this is the best chance for our precious little one.
I think of all
she's had to endure -those heart breaking screams as I stand in the hallway waiting for yet another spinal injection to be over, the little girl who never makes a sound, never sheds a tear is suddenly so completely hurt and I can do nothing to console her.
This treatments procedure will again be via lumbar puncture, once a week for four weeks I'll again make my little one endure such pain, although this time we could possibly receive gains, this time we could receive our miracle.
I tell piper we'll
soon be going on a big plane to see new doctors who may be able to help make her stronger.
Of course I never really know how much piper understands, although I do my best to inform her of what's about to happen, she smiles and arches her back! which could
be a way of saying 'finally someone may set me free' or maybe its just the joy of someone smiling with her.
To stop or reduce the seizures, to swallow, to use her bowels, to sit, to stand, to talk, to control her hands, to kiss, to hug, to hold her
head is all we've ever wished for. Of course to expect all of these things would be a true miracle we know this will not happen, but just one of these things would change our little girls world.
So we take this amazing chance on stem cell treatment, a
treatment we are told will not be available in Australia within Piper's life time, we are so completely blessed, so completely thankful to be given this opportunity.
Pipers treatment will commence three days after we arrive in Beijing and consist of
four stem cell implantations by lumbar puncture, four stem cell implantations by IV, daily rehabilitation, training and traditional Chinese medicine, medicines through IV are also used to stimulate the production of the body's own stem cells, with hope this
will repair the neural system defect preventing the abnormal nerve discharge, treatment is at a cost of $31,500 US dollars, so I find myself watching the rise and fall of the Australian dollar and it's conversion rate and I pray we are able to transfer the
required funds without incurring such a high cost, for the moment the conversion sits just over $35,500 AUS. So silly that I hadn't taken this into consideration, although in my own crazy defense it's kind of all new to me.
We now have tickets, visas
and passports, I think I write myself a new list each day in fear I'll forget something.
Our doctor and dietician have been wonderful ensuring we have the supplies we need with minimal complications, as has the support of our entire community for it is
through the generous hearts of others that this treatment we could only dream to receive is suddenly our reality.
For this we are truly thankful 💜
We are well on our way to giving our purple princess the best life possible 💜