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Wondering if anyone may be able to offer advice when traveling with a disabled child, we seem to have come across a small bump in the road.


Our little frequent flyer quite easy to handle during our one hour flights to Melbourne, most often comfortably curled up on Mummy, as time has passed transfers have become more of a challenge and now our little girl has reached the age of three regulations and requirements have set in.  Piper must now have a seat of her own, only this is quite impossible for a little girl with limited head control, low muscle tone, scoliosis, respiratory complications and seizures.


Piper can not sit although aided by a CARES harness (a special seatbelt which helps to hold Piper in an upright position) this can be achieved, -achieved although her little head hangs to her chest and without a full harness through the legs Piper also slips down the seat, we continuously lift Piper to an upright position and hold her forehead.


The CARES harness is wonderful, compact and easy to use although perhaps still not completely ideal for our situation, with advice from our airline we have discovered a way which may make the 14 hour flight a little more comfortable, the suggestion - to purchase an extra seat which Piper can then lie across – I guess this idea would work much the same as a traveling bassinet and finally we thought we had a solution that did not involve us having to hold our little girls head the entire way to Hong Kong, it would seem the partnering airline in China which will take us on to Beijing flying for an additional four hours does not accept the CARES harness, now if I’m unable to have my little girl placed on my lap or in a harness, I’m just baffled as to how we are able to travel safely or at all. 


I appreciate this is an unusual scenario, although hopeful someone has overcome a similar situation.  If anyone could offer any advice it would be so greatly appreciated. <3 x


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Lydia Gallant & Evan | Reply 19.03.2014 05:28

There's always a solution. We use the Columbia 2000 car seat for our boy - airline approved. He also has very little head control and so we use a neck collar.

Pain family 19.03.2014 05:47

We have just started to use a neck collar which we have found to work well, such a simple solution, it will certainly become our travel companion :) Thank you

Summer | Reply 11.03.2014 11:58

Another meeting with the travel agent today and it seem it’s the type of aircraft not the provider that restricts the use of the harness, so we are now working towards the possibility of finding a suited aircraft without too much of a delay in connecting

Janet Jonas-Oliver | Reply 11.03.2014 10:32

This looks promising http://blog.amsvans.com/now-children-with-disabilities.../
. And the facebook page Have wheelchair will travel good source of into.

Pain family 11.03.2014 12:23

The answer to our prayers? Hopefully one day compulsory on every air craft :) thank you for sharing Janet x

Nicole Davis | Reply 11.03.2014 03:25

Hi Summer, I have seen these harnesses before...not sure if something like this would help with head control? They are called a slumber sling - http://www.apartmenttherapy.com/how-do-you-keep-your-childs-head-upright-when-travelsleeping-197838

Sue Henson | Reply 11.03.2014 02:25

Hi- try contacting the Independent Living Centre - they may have some ideas for you.

Deanne | Reply 10.03.2014 22:55

Please share on Mommies of Miracles Facebook page or Parents of Children with a neurological disorder. Someone else should have experienced the same issue.

Annette Gray | Reply 10.03.2014 21:40

I can't understand why they won't allow it? She's a child, after all. Are you able to use some sort of neck brace to hold her little head up? It's so unfair!

anna banaba | Reply 10.03.2014 17:22

car seat is good idea. but theres only a few that are approved by airlines. i will try and find out make for you as i had one my students travel in a car seat.

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Latest comments

11.11 | 07:44

hi, my name is Lexi Crutchfield i go to school with Willow, i wish you all the best and i hope piper can become the best she can be.

22.05 | 13:21

Get Physiotherapy Equipments for instant pain relief

07.02 | 09:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

06.02 | 05:38

Piper is one tough little cookie, I have no doubt at all that she’ll continue to grow and surprise us all. Love you Princess πŸ‘‘ Piper. πŸ’œ

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